I don't know enough about it mate, I'll have to read the rest and have a proper think about it, I don't know why but the story of that little girl who won the right to be frozen card to mind hence the parents understandable inability to let go, but they won't be able to move on, maybe have another baby, I don't know the circumstances or ages, and I know losing one child can't just be magically replaced but I'm just thinking if they want to be happy parents to to a healthy child, or a child they can give some sort of quality of life to,
Then if they listen to advice now they can grieve and eventually if they want and if they are ready, be new parents again.
The problems you have is big pharma will take on just about any impossible case if you have enough money, add that to the fact that the NHS has cut funding for successful treatments based on pricing i.e. let's say top new cancer drugs that have even a 5% better survival rate might be available in no trusts, some trusts or privately in England until its patent runs out from the original manufacturer and they can buy generic versions.
That's why I know lots of adults from the UK are going to Poland and Eastern Europe for private treatments because they are affordable and wouldn't be affordable privately back home and/or on the NHS without a crazy waiting period.
So add all these up with stories in the press, on social media about some genuine healthcare professionals and some snake oils sales men and it must be a nightmare.
But tbf in this case, wasn't the child at Great Ormond Street? If they've already been given a prognosis from the best we have then other countries should be prepared to listen to applications from abroad for private treatment but also you'd hope their Hippocratic oath were they don't set out unreasonable expectations and also comment on the expert advice of the professionals they've already seen would help make a decision, but who knows.
But yeah, politicians using situations to their own advantage, no surprises there.
It's fucked up that a story like last week and the wee Sunderland mascot and Defoe is the exception rather than the rule. Same with Beckhams, remember that little girl mascot that they became really close to genuinely, strip away the riches and the brand of professional sports people or celebrities and find out there's some genuine good and kindness in them and the world is shocked, so to think for a second a politician who maybe genuinely does feel a certain way about something but if they feel like they aren't making a situation any worse they'll jump on anything, and even if they are making a situation any worse, there's a good chance they'll pole ahead anyway if it suits their agenda.
Well I suppose that's the knighthood fucked.