Charlie Gard

The original Den of Iniquity
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redzebs
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11 months ago

I'm not sure I'd go that far with America Alf, like any parent I can only imagine that they want to keep him alive no matter what, no matter in what state, in the hope that someday a cure will be found to wipe out any affliction, no matter how impossible that might seem.

I'm sure there are people using the situation for their own purposes like when Jermaine Defoe made Bradley's story massive, the parents had to say, please be aware of the false just giving pages.

But right up to Obsmacare etc. I'm sure they could have found a local situation, which they could control easier for those sorts of evil, twisted schemes.
Well I suppose that's the knighthood fucked.
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Alfonso Bedoya
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11 months ago

redzebs wrote:I'm not sure I'd go that far with America Alf, like any parent I can only imagine that they want to keep him alive no matter what, no matter in what state, in the hope that someday a cure will be found to wipe out any affliction, no matter how impossible that might seem.

I'm sure there are people using the situation for their own purposes like when Jermaine Defoe made Bradley's story massive, the parents had to say, please be aware of the false just giving pages.

But right up to Obsmacare etc. I'm sure they could have found a local situation, which they could control easier for those sorts of evil, twisted schemes.
First off... the treatment as far as I understand, is so experimental it hasn't even been tried on animals... fair enough, as a parent you want to try absolutely anything... but this treatment is being put forth by outsiders who know nothing about Charlie himself, but claim to have been caught up in the tragic story... the doctors and specialist who DO know Charlie, are making the very reasonable argument, that whatever this treatment might achieve, it will do nothing for the brain damage... even IF, they make some slight improvement on Charlies body, there's no Charlie inside, to feel the benefits... I can't put myself in the parents shoes, but if I try, I do wonder if I'd want that for my daughter... I don't think I would... and that makes me wonder if the parents are being given false hope, by people who have other angles in this...

As Far as the Americans finding a "local situation"... that misses the point... when Obama was trying to get his health care policy through, he put forth the UK and our NHS as a system to aspire to... but opponents to it, largely backed by the insurance industry who stood to lose billions, countered that, and also used the UK and our NHS as an example of what America should be afraid of... I even remember a specific article written by some Republican, claiming that we had what he called "death panels"... whose responsibility it was to decide whether individuals were worth the cost of saving... this is exactly the sort of case he was talking about, right here in England... and it does make me wonder why Trump has gotten involved...
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redzebs
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11 months ago

I don't know enough about it mate, I'll have to read the rest and have a proper think about it, I don't know why but the story of that little girl who won the right to be frozen card to mind hence the parents understandable inability to let go, but they won't be able to move on, maybe have another baby, I don't know the circumstances or ages, and I know losing one child can't just be magically replaced but I'm just thinking if they want to be happy parents to to a healthy child, or a child they can give some sort of quality of life to,

Then if they listen to advice now they can grieve and eventually if they want and if they are ready, be new parents again.

The problems you have is big pharma will take on just about any impossible case if you have enough money, add that to the fact that the NHS has cut funding for successful treatments based on pricing i.e. let's say top new cancer drugs that have even a 5% better survival rate might be available in no trusts, some trusts or privately in England until its patent runs out from the original manufacturer and they can buy generic versions.

That's why I know lots of adults from the UK are going to Poland and Eastern Europe for private treatments because they are affordable and wouldn't be affordable privately back home and/or on the NHS without a crazy waiting period.

So add all these up with stories in the press, on social media about some genuine healthcare professionals and some snake oils sales men and it must be a nightmare.

But tbf in this case, wasn't the child at Great Ormond Street? If they've already been given a prognosis from the best we have then other countries should be prepared to listen to applications from abroad for private treatment but also you'd hope their Hippocratic oath were they don't set out unreasonable expectations and also comment on the expert advice of the professionals they've already seen would help make a decision, but who knows.

But yeah, politicians using situations to their own advantage, no surprises there.

It's fucked up that a story like last week and the wee Sunderland mascot and Defoe is the exception rather than the rule. Same with Beckhams, remember that little girl mascot that they became really close to genuinely, strip away the riches and the brand of professional sports people or celebrities and find out there's some genuine good and kindness in them and the world is shocked, so to think for a second a politician who maybe genuinely does feel a certain way about something but if they feel like they aren't making a situation any worse they'll jump on anything, and even if they are making a situation any worse, there's a good chance they'll pole ahead anyway if it suits their agenda.
Well I suppose that's the knighthood fucked.
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swampash
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11 months ago

I can't imagine being in the parents' shoes, but it must surely be in the kid's best interests to let him die?
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Alfonso Bedoya
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11 months ago

swampash wrote:I can't imagine being in the parents' shoes, but it must surely be in the kid's best interests to let him die?
That a statement or a question?
"Badges, to god-damned hell with badges! We have no badges. In fact, we don't need badges. I don't have to show you any stinking badges, you god-damned cabrón and ching' tu madre! Come out from that shit-hole of yours. I have to speak to you."
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Lazarus
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11 months ago

Alfonso Bedoya wrote:Anyone else getting a very cynical feeling about this?

The argument, that the parents won't give up on their boy is simple enough, and probably rings sound with any parent... and I can't put myself in their shoes... but...

This case has been dissected to the core, and the consensus is, this poor lad is a vegetable...

Now, the hard core pro lifers have been out in force supporting the parents right to keep him alive...

Their argument is there is some experimental therapy that will "potentially" halt the wasting disease that's caused the problem... but, even IF this therapy makes any difference at all, it will only amount to a fraction of improvement on the disease, but will do nothing for the brain damage...

So, I find myself asking what is the point?

Then I read the parents have accumulated over a million quid in donations to get him to the America for this experimental therapy... and the cynic in me shudders... but surely, that can't be it, can it?

Then I read this...

http://www.msn.com/en-gb/news/uknews/ho ... ailsignout

And suddenly, the horrid reality... that the cynic in me hasn't even come close to the gross story that might be unfolding here...

Someone tell me I'm wrong... the parents, in their grief have reached out for support, and Trump, and his ilk have had an idea, to use this poor lad as their poster child to scrap the Obamacare... they've gotten in touch with Charlies parents, and filled their heads with false hope, just to get them on board...

This has turned into a horrid story, I just can't see any outcome, that benefits either Charlie or his parents... but that doesn't seem to matter... there's an angle here, that some "CUNT" can take advantage of...

Or have I added 2+2 and got 13??

This is exactly what me and my missus have been saying for days. Only i'll throw in the whole facebook, fundraising, cause crap as well.
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swampash
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11 months ago

Alfonso Bedoya wrote:
swampash wrote:I can't imagine being in the parents' shoes, but it must surely be in the kid's best interests to let him die?
That a statement or a question?
Doesn't the question mark at the end of the sentence give a bit of a hint Alf?
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redzebs
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11 months ago

Is it really a subject to be ficklessly bickering over, the main point is you're both probably right, it's just a terrible situation overall, no hope worse than false hope, especially false hope with a sinister motive
Well I suppose that's the knighthood fucked.
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swampash
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11 months ago

Does anyone know anything about the treatment that is on offer in the US? Has it been proven to work in such cases, or is it just someone wanting to mount a ghoulish experiment?
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Lazarus
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11 months ago

As Alf says i believe that nothing is expected to fix the Brain Damage, the treatment is supposed to have a 10% chance of helping the muscle wasting problem.
Why is this kid so important when there are thousands of kids dying all over the world everyday due to disease, hunger, poverty or war etc? Most of those kids don't have irreparable brain damage.
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